Here are some frequently asked questions from patients and caregivers. If you don’t see an answer to a question you may have, reach out to us via email at info@ambitinc.com or call us at 1-877-584-8995 Monday through Friday, 9-5 pm ET to get support from one of our AmbitCare Ambassadors.
AmbitCare is part of a larger organization, Ambit RD Inc. with a mission to transform every life touched by rare disease. AmbitCare provides free resources to caregivers, patients, and physicians to reduce the time to complete diagnosis and improve outcomes for patients with rare diseases.
AmbitCare is part of a larger organization, Ambit RD Inc. with a mission to transform every life touched by rare disease. AmbitCare provides free resources to caregivers, patients, and physicians to reduce the time to complete diagnosis and improve outcomes for patients with rare diseases.
AmbitCare provides free 1:1 support and information to help you take control of your medical journey. Current AmbitCare services include free genetic counseling, access to genetic testing, and access to customized resources. All our services provided are virtual, we do not currently have a physical location. Our AmbitCare Ambassadors are available Monday through Friday, 9-5pm ET. Please use this link here to schedule time with an AmbitCare Ambassador today!
Please note, AmbitCare is not a substitute for medical advice including diagnosis and treatment of rare diseases. Always seek the advice of your physician or licensed healthcare provider with any questions you have regarding a medical condition.
No. All of AmbitCare’s services will always be free to you and your loved ones.
When you sign up for our services, you consent to allowing us to analyze your de-identified data. We provide these findings to organizations looking to advance treatment options for rare diseases. We receive fees from some of these organizations which help us improve our services. AmbitCare does not rely on grants or donations.
We currently support Spanish on our site. More information about our services in Spanish can be found at www.ambitcare.com/espanol. If you need genetic counseling in another language, please reach out to an AmbitCare Ambassador at info@ambitinc.com and we will provide a translator.
There are two ways to register:
Registration should take no longer than 5-10 minutes to complete. If you have questions about an individual question, you can click on the ⓘ icon next to the field or ask the AmbitCare Ambassador.
AmbitCare will use your information to provide customized resources, such as free genetic services (if you qualify).
There are two ways to register:
Registration should take no longer than 5-10 minutes to complete. If you have questions about an individual question, you can click on the ⓘ icon next to the field or ask the AmbitCare Ambassador.
AmbitCare will use your information to provide customized resources, such as free genetic services (if you qualify).
AmbitCare uses your email and phone number to provide services to you. AmbitCare uses your state to identify local resources for you.
Your privacy is very important to us, so we make every effort to keep you and your loved one’s information safe and secure. All this information will be encrypted and securely stored. Your individual information is never sold or shared with other parties, except in cases where you have consented to receive services. For more information on how your information is used, please see www.ambitcare.com/privacy.Sharing your personal information allows us to deliver free customized resources to help you along your medical journey.
Our free resources include but are not limited to:Additionally, we may use your information to:
If you would like to update, correct, delete, or change your permissions please contact your AmbitCare Ambassador or email us at info@ambitinc.com.
Sharing your personal information allows us to deliver free customized resources to help you along your medical journey.
Our free resources include but are not limited to:Additionally, we may use your information to:
If you would like to update, correct, delete, or change your permissions please contact your AmbitCare Ambassador or email us at info@ambitinc.com.
It will help your genetic counselor if you can share your health records with AmbitCare before your free genetic counseling appointment, should you qualify and choose to do it. Your AmbitCare Ambassador can help you with this, but it is okay if you are not ready to share – the genetic counselor may just have a few more questions for you. AmbitCare takes your privacy seriously. We will not share their findings without your permission to do so.
Additionally, we de-identify your health information (e.g., remove identifiers) and share it with our partners, who are working to advance treatment options for rare diseases. Knowing how difficult it is to get answers, you could be part of the solution for others who have similar needs.Your AmbitCare Ambassador and other select individuals who work for AmbitCare will have access to your health information on a needed basis for the purposes of maintaining your account and providing you with services.
In addition, you may consent to us sharing your information with healthcare providers involved in your care, such as a genetic counselor or your physician.
We do not and will not ever sell, trade, or rent your personal identifying information. With your consent, we anonymize your information and share it with our research partners (such as academic researchers and healthcare companies) in efforts to advance medical treatments and rare disease research for you and your loved ones.
You can upload your health records at the very end of our registration at www.ambitcare.com/registration. Please note that this is not required to complete the submission. Otherwise, after you have registered with AmbitCare, an AmbitCare Ambassador will reach out to you within 1-2 business days with instructions on how to upload your health records and walk through any questions you may have about health records we may need.
We ensure that your information is kept private and secure according to industry standards and government regulations. AmbitCare uses HIPAA (Health Insurance Portability and Accountability Act)-compliant cloud services which ensures confidentiality and integrity for all health information we collect and maintain on your behalf. This includes all our data storage, telehealth, and electronic signature processes. We train staff and contractors regularly on our company security policies and requirements as well. Although we take standard industry precautions to prevent breaches, in the very unlikely event that they happen we are required by federal and state law to notify you promptly.
To view the full AmbitCare Privacy Policy and learn more about our privacy policies, such as the use Google Analytics, visit www.ambitcare.com/privacy. To view the full AmbitCare Terms & Conditions, visit www.ambitcare.com/terms-and-conditions. To read the Privacy Policy and Terms & Conditions in Spanish, please click here and here, respectively.
Absolutely! AmbitCare is continually adding new rare disease groups with support resources to our services offered. If you do not see any conditions relevant to you, register and we will provide you and your loved ones with the 1:1 support you need to take control of your medical journey. In addition, we will let the AmbitCare community know any time a new set of conditions that are supported by AmbitCare are added to our services.
Absolutely! AmbitCare is continually adding new rare disease groups with support resources to our services offered. If you do not see any conditions relevant to you, register and we will provide you and your loved ones with the 1:1 support you need to take control of your medical journey. In addition, we will let the AmbitCare community know any time a new set of conditions that are supported by AmbitCare are added to our services.
Your AmbitCare Ambassador will provide these resources to you through phone or email.
Your AmbitCare Ambassador will provide these resources to you through phone or email.
Your AmbitCare Ambassador will provide this information to you through phone or email.
Please note, AmbitCare is not a substitute for medical advice including diagnosis and treatment of rare diseases. Always seek the advice of your physician or licensed healthcare provider with any questions you have regarding a medical condition.Please go to www.ambitcare.com/stories, scroll to the bottom of the page, and click on “Get in Touch”. Alternatively, you can share your story with one of our AmbitCare Ambassador’s over the phone Monday-Friday 9-5pm ET at 1-877-584-8995.
Our ambassadors can gain insight by reading your stories to help us better understand you or your loved one’s journey. We may even find that some stories, quotes, pictures, or videos may help others, so we will share your experience through our blogs or social media. Not all the stories will be posted but providing others with your experiences helps to improve our understanding of the struggles and success of caring for people with rare diseases.
If you currently have a story shared on our site and/or our social media and no longer wish to have it up, please contact us at info@ambitinc.com and we will take it down immediately.
Please go to www.ambitcare.com/stories, scroll to the bottom of the page, and click on “Get in Touch”. Alternatively, you can share your story with one of our AmbitCare Ambassador’s over the phone Monday-Friday 9-5pm ET at 1-877-584-8995.
Our ambassadors can gain insight by reading your stories to help us better understand you or your loved one’s journey. We may even find that some stories, quotes, pictures, or videos may help others, so we will share your experience through our blogs or social media. Not all the stories will be posted but providing others with your experiences helps to improve our understanding of the struggles and success of caring for people with rare diseases.
If you currently have a story shared on our site and/or our social media and no longer wish to have it up, please contact us at info@ambitinc.com and we will take it down immediately.
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Disclaimer
Please note that AmbitCare provides this information for the benefit of the rare disease community. AmbitCare is not a medical provider nor a health care facility. AmbitCare can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Individuals must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure, or treatment of a condition or disorder.
