Difficult to Control Seizures: Most patients with CDD have daily seizures. Seizures typically begin by age 3 months and are extremely difficult to control.
Intellectual Disability: Nearly all patients with CDD have developmental delays and eventually intellectual disability.
Currently there is no cure for CDD. Patients are treated for their symptoms, not for the underlying cause of the disease. Seizure control is the primary goal for patients with CDD. There are currently companies investigating treatments for CDD including possible gene therapies.
The average person with a rare disease sees 7.3 specialists over a span of 5-7 years before receiving an accurate diagnosis. AmbitCare Ambassadors provide free services including listening to understand your challenges, guiding you on potential next steps, and recommending resources.
Have additional questions? Contact an AmbitCare Ambassador by phone at 1-877-584-8995 or by email at info@ambitinc.com today.
Our hours of operation are Monday-Friday, 9-5pm ET. An AmbitCare Ambassador will typically respond within 1-2 business days.
© 2021 Ambit Care. All Rights Reserved.
Disclaimer
Please note that AmbitCare provides this information for the benefit of the rare disease community. AmbitCare is not a medical provider nor a health care facility. AmbitCare can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Individuals must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure, or treatment of a condition or disorder.
